Don’t Fail on Heart Failure

Don't Fail on Heart Failure
Don’t Fail on Heart Failure

 

“Britain Shouldn’t Fail on Heart Failure, the Cinderella Condition”

Tuesday 18 June 2013 -12.30pm at Churchill Room, Palace of Westminster

The Pumping Marvellous Foundation, the UK’s heart failure charity will be hosting a landmark parliamentary reception on Tuesday 18th June 2013 where heart failure patients and eminent cardiologists supporting their cause across the UK will highlight critical heart failure issues to MP’s and senior members of the Department of Health stating that we are failing as a country to recognise the catastrophic effects that a diagnosis of heart failure brings to many 100,000’s of UK families.

Prognosis for heart failure is worse than the vast majority of common cancers. 40% of people die within the first twelve months after diagnosis.

Heart Failure affects an average of 1000 people in every Parliamentary constituency. The patient, charity and expert cardiologists will have the opportunity to speak to more 100 MPs and senior members of the Department of Health about the lack of recognition and support for heart failure patients, what it is like to live with heart failure and the postcode lottery that is apparent reference the access to the latest pharmaceutical drugs and life altering cardiac resynchronisation therapy via implantable devices.

All this to achieve parity of care alongside other long term conditions like cancer. People with diabetes don’t have to pay their prescription fees, people with heart failure do.

Background to heart failure

The condition means that someone’s heart cannot pump sufficient blood to meet their body’s needs. It impedes the ability to work and carry out basic daily activities. It has a prognosis worse than most common forms of cancer with over a third of patients dying within one year of diagnosis. Unfortunately those affected by heart failure do not have the support that cancer sufferers receive. The costs to the NHS of heart failure are also dramatic.

Heart Failure accounts for 2% of all NHS hospital bed days and 5% of all emergency hospital admissions and there are up to 750,000 people who have Heart Failure in the UK.

Nick Hartshorne-Evans, CEO and Trustee of Pumping Marvellous says:

“Optimum patient after-care and reduced burden to the NHS is at the heart of the Pumping Marvellous approach. For many people, hearing the words “heart failure” sounds like a death sentence, but with effective clinical and self-management techniques this does not have to be the case.

The aim of this reception is to highlight and discuss the clinical and psychological impact on patients and their families as well as the issue of equality of care.

Heart failure is a disabling condition and, despite improvements in treatment and management, generally has a poor prognosis. Patients with heart failure suffer from both the physical and emotional implications of the condition, along with financial concerns associated with inability to work or reduced ability to work. Lifestyle and self-management play an important role in the management of heart failure.

The Reception will take place on Tuesday 18 June, from 12.30pm to 3pm at Churchill Room, Palace of Westminster.

Ends

Interview Opportunity: Please contact:

Nick Hartshorne-Evans – CEO – +44 7854 407050

Caroline Terry – Trustee –   +44 07894 496077

Pumping Marvellous Foundation   Tel: 0800 9 788133 ( +44 1282 778059)

 

Notes to editors

About The Pumping Marvellous Foundation

Pumping Marvellous is the UK’s heart failure charity and was established in 2010 by Nick Hartshorne-Evans from Lancashire. Nick was diagnosed with heart failure in 2010, and with support from NHS East Lancashire’s heart failure team, has subsequently set up The Pumping Marvellous Foundation, to support newly and existing heart failure patients, their carers and their families.

Heart Failure

Heart failure is a clinical syndrome in which the ability of the heart to pump sufficient blood around the body is impaired, causing symptoms such as fatigue, breathlessness and fluid retention (swollen ankles).

There are a number of treatment options in the management of heart failure including angiotensin converting enzyme (ACE) inhibitors and beta blockers. Medical devices, such as cardiac resynchronisation therapy, are also options for some patients and have dramatic effect on quality of life.

The management of heart failure represents a significant cost burden to the NHS. Nationally, people with heart failure account for about 5% of all admissions to hospital and one million bed days, with readmission rates among the highest for any common condition in the UK (as high as 50% over three months).

 

References

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