Heart Failure Toolkit update
Lancashire Telegraph – written by Catherine Pye
The Hapton-based charity Pumping Marvellous applied for £22,000 from NHS North West to produce 1,500 tool kits — parcels of information on how to live with the condition after discharge — and hope to launch them at the end of September.
Nick Hartsthorne-Evans, 42, set up Pumping Marvellous after he suffered heart failure, aged 39, from picking up a virus. He said: “Hospitals do their best to give leaflets that are clinically correct, but is that what the patient needs, to read about how morbid it is?
“What they give you satisfies your needs for about six months. It’s not a life-long thing.
“What we’re doing is based on the ‘bounty bag’ that new mums get after giving birth. It will give patients all the information they need throughout their lives on how to manage the condition. “There will be information in there for the employer, about smoking cessation and alcohol management, information for carers, and how make sure someone is getting benefits they’re entitled to.
“For the cost of each tool kit — about £15 — it will have a great impact on reducing hospital admissions and will make people less symptomatic
After an 18 month trial period, Nick hopes to be able to secure more funding to roll the scheme out regionally and then nationally.